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L’expérience subjective de la maladie cœliaque des patients diagnostiqués à l’âge adulte

Abstract : Abstract Introduction : Celiac disease is estimated to affect between 1 in 100 and 1 in 300 Caucasian subjects. Many quantitative studies have explored the issues encountered by these subjects; however, few studies have addressed the subjective and experiential dimensions of celiac disease. Objective : The objective of this qualitative exploratory study is to expand current knowledge concerning the subjective experience of celiac disease and of a gluten-free diet in subjects diagnosed with celiac disease in adulthood. Method : Data was collected through non-directive interviews with 14 subjects aged between 28 and 53 (M = 41.7, SD = 7.48). Results : An interpretive phenomenological analysis identified various themes related to the experience of illness: (1) history of the disease, (2) symptoms, (3) nutrition, (4) perception of medical experiences, (5) relationships with family and friends, (6) psychological implications, and (7) consequences for daily living. Conclusion : The results show the importance of developing a “mythology” (concerning the disease's origin) to enable the inclusion of the condition in the individual's on-going personal story.
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Contributor : Barbara Houbre <>
Submitted on : Wednesday, October 30, 2019 - 5:48:29 PM
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Barbara Houbre, M.-L. Costantini, J. Pouchot, C. Tarquinio, L. Muller. L’expérience subjective de la maladie cœliaque des patients diagnostiqués à l’âge adulte. European Review of Applied Psychology / Revue Européenne de Psychologie Appliquée, Elsevier, 2018, 68 (1), pp.35-43. ⟨10.1016/j.erap.2017.11.002⟩. ⟨hal-02340328⟩



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