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The Unpredictability of Drug-Resistant Epilepsies in Children: An Anthropological Approach to Daily Care

Abstract : This anthropological research aims to highlight a global approach to drug-resistant epilepsy in children from mother's point of views. Forty semi-structured interviews have been conducted to better understand to what extent the epileptic seizure are the core of daily care or not. In the results, its appears that unpredictability is not limited to seizure but rather to the complete trajectory of severe epilepsy. As so, the article describes unpredictability in terms of diagnostic, prognostic, treatments, associated disabilities and disorders, social and educative supports, daily organization. In conclusion, the various unpredictabilities in drug-resistant epilepsy conduct to consider this disease not only as so but rather as a permanent disability for patient and for their family.
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https://hal.univ-lorraine.fr/hal-01520486
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Submitted on : Wednesday, May 10, 2017 - 3:07:29 PM
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  • HAL Id : hal-01520486, version 1

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Sophie Arborio. The Unpredictability of Drug-Resistant Epilepsies in Children: An Anthropological Approach to Daily Care. EC Neurology, E-Cronicon, 2017, 6 (2), pp.63-73. ⟨hal-01520486⟩

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