L'information et la communication autour des maladies respiratoires. De la recherche d'information du malade à la construction sociale d'un champ

Abstract : During the 1980's, the management and treatment of people suffering from respiratory failure has been improved by new technical developments enabling patients to return home instead of staying in hospital. These patients were thus confronted by certain issues that they were not necessarily prepared for. Diagnosed with a pathology that they did not know, they had to become more self-reliant in terms of information research, health crisis management and the use of medical treatment. They had to understand and build a representation of their disease, a disease often unknown to their family/social circle as well as themselves. They also had to face the regard of others and to fight against stigmatization. The patients thus joined together and created associations in order to address, together, such problems. These departmental or regional associations soon became an organization on a national scale, the Fédération Française des Associations et Amicales de malades Insuffisants ou handicaps Respiratoires (FFAAIR). Progressively, this movement enabled agents to gain legitimacy in representing patients and, together with health professionals, take part in the construction of a new social field. Such transformations were supported and made possible by the emergence of a new form of socio-discursive associative commitment
Complete list of metadatas

Cited literature [217 references]  Display  Hide  Download

https://hal.univ-lorraine.fr/tel-01749670
Contributor : Thèses Ul <>
Submitted on : Thursday, March 29, 2018 - 12:22:52 PM
Last modification on : Wednesday, April 11, 2018 - 1:27:33 AM
Long-term archiving on : Friday, September 14, 2018 - 9:03:40 AM

File

DDOC_T_2012_0370_HOFF_vol_1.pd...
Files produced by the author(s)

Identifiers

  • HAL Id : tel-01749670, version 1

Collections

Citation

David Hoff. L'information et la communication autour des maladies respiratoires. De la recherche d'information du malade à la construction sociale d'un champ. Sciences de l'information et de la communication. Université de Lorraine, 2012. Français. ⟨NNT : 2012LORR0370⟩. ⟨tel-01749670⟩

Share

Metrics

Record views

23

Files downloads

114